The first time I saw another person with a desmoid tumor it was online. To this day, I have actually never been face to face with someone that shares my disease. Makes sense. The odds that I would just randomly run into a desmoid patient are very small. We are a one in a million… Read More Why I Tell My Story
Dear Adulthood, I’d like to inform you of my resignation, effective immediately. I know it’s customary for an employee to give at least two weeks notice, but I’m done. Spent. Like some day-old sourdough, I’m toast. You might as well slap some butter on me and sprinkle me with cinnamon sugar. Have you tried toast… Read More I Hereby Resign From Adulthood
Aside from a jacked up thyroid gland and a stomach that was sometimes a bit disagreeable, I was a fairly healthy individual before my desmoid tumor diagnosis in 2012. I had no clue what it was like to be seriously ill, nor how to deal the physical, emotional, and financial fallout that inevitably follows. That… Read More The ABC’s Of Sick Advice
I’m not really a gym kind of person. I prefer the outdoors when I exercise, but sometimes Mother Nature is kind of a hag. On this particular day she was spreading her lightning all around and I wasn’t about to risk death for some cardio. We have a gym at our apartment, but I’ve never… Read More So, I Went To The Gym
One day, lamenting the fact that my hands were in so much pain I could not finish coloring a page in my snazzy new adult coloring book, I was met with this unsolicited advice: My hands hurt, too, but I just take my time and if it takes me a week to color a page… Read More I Need To Tell You
I see so many lists telling me how I can be more happy, more grateful, and more centered in just a few easy steps. I’ve tried some of them and I have to tell you, dear readers, they DO NOT WORK. Not all lists are poppycock, though. I have compiled a list chock full of… Read More Misery Awaits You
Next to writing, reading is the most important job requirement for a blogger. As far as I can tell, these are the top five demands of the job: Write Read Consume copious amounts of caffeine Guilt your friends and family into reading and sharing your stuff Occasionally curl up into the fetal position and question… Read More Grrrs And Greats – Tumor Edition
