We’ve all watched it, that iconic scene in A League of Their Own where Tom Hanks loses his shit, mouth stuffed to capacity with chewing tobacco. There’s no crying in baseball. THERE’S NO CRYING IN BASEBALL! And that’s how it goes for us sickies. Stiff upper lip and all. We are fighting a battle, of course. We’re… Read More There’s No Crying In Desmoids
When I was younger, a cherubic faced high school lass, I made the fateful decision to let my sister’s friend perm my hair. I believe the term that was bandied about was ‘body wave’ but let’s be real, it was a perm. I wanted full hair, wavy and luxurious hair, like I had just taken… Read More There Are No Bad Decisions
My daughter and her roommates recently visited us for a week. I showed them my two favorite bookstores in town. We spent a day at the pool. They got to see downtown. I cooked for them. We hung out and played board games. They went on a mining expedition and found some amazing specimens of… Read More The 5 Ways Putting Together A Puzzle Is Like Being Sick
This will be my third attempt at writing this post. I’ve had two other drafts waiting for me to finish and edit, but neither of them felt right. That’s how it goes for me. That’s how I know I want to send one of my works out into the blogosphere. It feels right. For some… Read More All Because I Got Sick
It was once customary for women to don a mourning veil after the death of a close loved one. The sheer black sheath, a figurative pall, was used to protect a mourner from the leering eyes of those around her while she was most vulnerable. In many ways, during my years since my diagnosis with… Read More The Fog Of Fear
The first time I saw another person with a desmoid tumor it was online. To this day, I have actually never been face to face with someone that shares my disease. Makes sense. The odds that I would just randomly run into a desmoid patient are very small. We are a one in a million… Read More Why I Tell My Story
Aside from a jacked up thyroid gland and a stomach that was sometimes a bit disagreeable, I was a fairly healthy individual before my desmoid tumor diagnosis in 2012. I had no clue what it was like to be seriously ill, nor how to deal the physical, emotional, and financial fallout that inevitably follows. That… Read More The ABC’s Of Sick Advice
