It was the kind of warm evening you look forward to after such a long winter. Days of rain left the air sticky enough to remind you summer was right around the corner, but cool enough to let you know it’s still spring. It felt nice. …
Tag: desmoid tumor
Let’s Have A Chat About Dr. Sunshine
As I write this, I must tell you, a more beautiful day could not be had. The sun is shining from one of the bluest skies I’ve ever witnessed. The temperature, a pleasant 75°F. There’s a slight breeze that blows my hair in ticklish wisps across …
The Steroid Chronicles
My emotional baseline could only be described as ‘wound tighter than a clock with a chance of tears’. I could either tell you to fuck off and walk away or go grab a bag of Skittles and cry while I watch Jersey Shore reruns. One never …
The Definitive Guide To Being Sick And Pleasing Everyone
Unlike that IKEA Gevorgivøorganschmoöorgan daybed you recently purchased, illness doesn’t come with an instruction manual. Not even a crappy one that substitutes actual words with crude stick figure drawings. And no complimentary Allen wrench for you, so good luck figuring this whole thing out. But all …
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One Of The 900
Today is Rare Disease Day and it’s also my late mother’s birthday. Every year, even if some of her children were older, mom always turned 29. When her obituary had her marked as a year younger than she actually was we all laughed and thought she …
Learning To Live On The Roller Coaster
Right now I’m sitting at my kitchen table, the spot where I typically write. The sun is at my back, every now and again the air conditioner kicks on. It’s an unusually warm February morning. After too many frigid days in a row, I welcome it. …
It’s Never About What You Think It’s About
I feel a certain sense of victory when I don’t have to wear a hospital gown for my scans. I don’t know why. I stopped trying to figure out the reasons behind my silly quirks and the odd things that run through my head years ago. …
