The first time I saw another person with a desmoid tumor it was online. To this day, I have actually never been face to face with someone that shares my disease. Makes sense. The odds that I would just randomly run into a desmoid patient are very small. We are a one in a million… Read More Why I Tell My Story
Aside from a jacked up thyroid gland and a stomach that was sometimes a bit disagreeable, I was a fairly healthy individual before my desmoid tumor diagnosis in 2012. I had no clue what it was like to be seriously ill, nor how to deal the physical, emotional, and financial fallout that inevitably follows. That… Read More The ABC’s Of Sick Advice
One day, lamenting the fact that my hands were in so much pain I could not finish coloring a page in my snazzy new adult coloring book, I was met with this unsolicited advice: My hands hurt, too, but I just take my time and if it takes me a week to color a page… Read More I Need To Tell You
Next to writing, reading is the most important job requirement for a blogger. As far as I can tell, these are the top five demands of the job: Write Read Consume copious amounts of caffeine Guilt your friends and family into reading and sharing your stuff Occasionally curl up into the fetal position and question… Read More Grrrs And Greats – Tumor Edition
Not to say that I was ever a hobbit, mind you. I’m not exactly tall, but I’m certainly not as stubby as a hobbit. My feet are kind of big, though, which is a little odd considering that I’m of average height, but they aren’t hairy. Well, I do have a stray hair or two… Read More I’m Not The Hobbit That I Was
I follow SoulPancake on Facebook because its content is always happy and funny and deep and I like that kind of stuff, ya know? It’s a great change from the political bickering and humblebragging you usually see there. Plus, it takes the sting out of the daily looming threat that our president might possibly start… Read More Old Me Tells Young Me What’s What
I suppose I’m dating myself with a Cheers reference, but it’s time you all came to terms with the fact that I’m an oldish lady. My fellow oldish folks know what I’m talking about. Youngins with Netflix know, too. You remember how Norm would walk in the bar and everyone would scream, “Norm!” I was… Read More Where Nobody Knows Your Name
